The Amazing Story of a Boy With a Rare Bone Condition Who Managed to Cross Over 100 Broken

Rohit, a 12-year-old boy from Uttar Pradesh, India, has endured a lifetime of challenges due to osteogenesis imperfecta, a rare genetic disorder commonly known as ‘brittle bone disease.’ This condition makes his bones extremely fragile, causing them to break with even the slightest touch. Over the years, he has suffered more than 100 fractures, earning him the nickname “glass bones” among locals.

Rohit’s severe condition not only makes him highly susceptible to fractures but has also stunted his growth. At 12 years old, he weighs just 15 kg (about 33 pounds) and stands only 17 inches tall. His daily life is heavily impacted, as he cannot perform many tasks independently and relies on his mother for assistance. Despite these challenges, Rohit aspires to become a singer and refuses to let his illness deter him from his dreams.

Osteogenesis imperfecta has no cure, but treatments are available to help manage the condition and strengthen bones. Unfortunately, these treatments are often inaccessible in developing countries like India. Rohit’s determination and positive outlook, despite living in constant pain and being unable to play with other children, highlight his resilience and hope for a better future.

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