With his limbs deformed by a rare syndrome called CLOVE, 5-year-old boy Giovanni Melgarejo, living in Dayton, Ohio, USA, is all too familiar with the stares and whispers of those around him. around.
Baby Giovanni was diagnosed with CLOVE Syndrome, a rare disease divided into many levels from mild to severe.
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Baby Giovanni’s limbs were swollen and deformed due to a strange disease.
The baby’s mother, Natasha Melgarejo, said that the strange disease caused Giovanni’s blood vessels, skin and limbs to become so swollen and deformed that outsiders often mistakenly thought the baby’s fingers and feet were fake. With the size of her swollen feet, Natasha could not buy any shoes that fit baby Giovanni. Giovanni couldn’t stand up because his body was in constant pain. Babies also sometimes have difficulty breathing because there is a lot of fluid in the lungs.
Every day, the poor boy has to use up to 8 different medications, both oral, topical and injected, to relieve pain and limit edema. However, Giovanni still bravely fought his illness. The child is currently studying at a school in Northern Nevada.
It is known that CLOVE is the English acronym for Congenital Lipomatous Overgrowth, Vascular Malformations and Epidermal Nevi. This disease is so rare that only about 100 people in the world have it.
