A special blessing: Celebrate the birth of a baby with an extremely large tongue.pink

Baby girl Paisley was born with a rare condition that caused her tongue to measure more than double the size of her mouth, making it virtually impossible for her to ever smile. When she was born, stunned physicians described her tongue as the largest they had ever encountered in a newborn. She was later diagnosed with Beckwith-Wiedemann Syndrome, an overgrowth disorder that affects one in every 11,000 births worldwide.

Mắc hội chứng lạ, bé sơ sinh có lưỡi to như lưỡi người lớn ảnh 2

Paisley required a breathing apparatus shortly after birth to prevent her from choking and was fed via a gastronomy tube until she was six months old. Her parents, Madison Kienow, 21, and Shannon Morrison-Johnson, 23, from Aberdeen, South Dakota, initially hoped that Paisley’s mouth would grow to accommodate her oversized tongue, but this did not happen. They then made the difficult decision to allow doctors to perform surgery on their daughter.

Mắc hội chứng lạ, bé sơ sinh có lưỡi to như lưỡi người lớn ảnh 3

The first surgery to reduce Paisley’s tongue failed as the tongue eventually grew back. However, at 16 months old, Paisley underwent a second tongue reduction surgery, during which more than six inches of muscle was removed from her tongue. This surgery was successful, and Paisley smiled for the first time, much to the joy and relief of her parents. Her mother, a pre-medical student, expressed her amazement at seeing her daughter smile and described it as a huge milestone.

Since recovering from the surgery, Paisley has not only been able to smile but also has no difficulties eating. Her facial features have changed, she smiles frequently, and she is even close to saying her first words. Before the surgery, the size of her tongue prevented her from making sounds to say words like “mama” and “dada.” This progress feels like a significant achievement for her parents.

Doctors are hopeful that Paisley will not need further tongue reduction surgery, marking a promising turn in her journey with Beckwith-Wiedemann Syndrome.

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